During a time when I was just beginning to climb out of a decade long chronic migraine cellar, I saw a call for volunteers on a migraine website I follow. At the time, I was unemployed and in the middle of an unplanned career change. I figured volunteering would give me some much-needed experience to help me find a job in my new career field. Looking back on that time, I had no idea how valuable this experience would be for me.
Yes, I now have some career-related experience under my belt, but I also have so much more than that. At Migraine World Summit, I am embraced by those who not only understand, believe, and support my chronic migraine journey but also value me for my strengths. On top of all that, I learned much more about migraine than I ever thought possible, and I continue to learn. Add in the feel-good vibes from helping get important information to other people with migraine, and it is a win-win situation.
In preparation for the 2020 summit, the Migraine World Summit is looking for volunteers in multiple roles including:
The largest patient event in the world for headache returns this March 20-28.
The Migraine World Summit will bring together 32 experts including doctors and specialists to share new treatments, research, and strategies to help you improve your migraine and chronic headache.
World-Leading Experts: At the Migraine World Summit, you’ll learn first-hand from 32 of the world’s top migraine and headache experts from leading institutions including the Mayo Clinic, Harvard Medical School, John Hopkins Hospital, Stanford Medical, John Hopkins Hospital, and the International Headache Society.
Full Access: Many of these world-leading experts have long waiting lists and fees that are beyond the affordability of the average insurance policy. Skip the waiting period and get straight into the room with these experts.
Free: The event is entirely free whilst live from April 18-26. Visiting dozens of specialists in one field would take years and costs thousands of dollars. This is an incredible opportunity to hear from dozens of leading experts in migraine for free during the week. After April 26 transcripts and interview copies are available to order.
Its been going on for weeks now. Every day feels like an attack from one side or the other. Just when I think there will be one calm day with somewhat reasonable expectations of me, then I get hit again.
The tangled mass of vibrant colors shooting out of the head makes visual the struggle to explain the traumatized mind. Surviving each day is challenging enough, but then we face trying to describe the sensation to others.
Burning stress, piercing hurt, and crushing fear Pile on, forming a jagged mountain of pain. Then, a feather lands atop with a whisper of breath. Giant boulders crash down, roaring like a freight train. The taste of blood in my throat, a migraine of molten lava, And my heart, pounding out of my chest, beating in my ears. The breaking point smoulders from holding it in too long.
So many things are passed on to our children including some of our most significant struggles. What a joy it is to see the positive aspects of family traits reflected in our children and what a devastating reality it is to see them struggle with pain. My youngest daughter has migraines. She got them from me. My mom and my maternal grandmother both had migraines, and I suspect this genetic condition goes back many generations more than any of us know.
So many things are passed on to our children, including some of our most significant struggles. What a joy it is to see the positive aspects of family traits reflected in our children and what a devastating reality it is to see them struggle with pain. My youngest daughter has migraines. She got them from me. My mom and my maternal grandmother both had migraines, and I suspect this genetic condition goes back many generations more than any of us know.
Today, after missing another school day, my sweet daughter is in bed with her head on an ice pack and her room as dark as can be in the middle of the day. I know exactly how she feels, yet I am powerless to end her pain. It was just after she was born that my migraines became chronic and, ultimately, intractable. She knows what her future could hold, and it both scares her and makes her sad.
Another journey is at hand because we must find a way to control/prevent my daughter’s migraine attacks before they take over her life. I’m so sorry little one. It is part of who we are, but I won’t let it overtake you.